Summary of reviewed papers
| Paper | Aim | Participants (n) (age range in years) | Data collection | Analysis |
|---|---|---|---|---|
| Ballard et al.18 | To investigate the impact of delay in diagnosis of endometriosis on women | 28 (16–47) | Semi-structured interviews | Thematic |
| Cox et al.19● | To examine women's experiences of endometriosis and the lack of support for sufferers | 61 (20–64) | Focus groups | Thematic |
| Cox et al.20● | To report on women's experiences of endometriosis in relation to the use of complementary therapies | 61 (20–64) | Focus groups | Thematic |
| Denny and Mann21▪ | To determine the impact of endometriosis-associated dyspareunia on the lives and relationships of women | 30 (19–44) | Semi-structured interviews | Thematic |
| Denny and Mann22▪ | To explore women's experiences of the primary care setting | 30 (19–44) | Semi-structured interviews | Thematic |
| Denny23♦ | To explore women's experiences of living with endometriosis | 15 (20–47) | Semi-structured interviews | Thematic, content |
| Denny24♦ | To explore women's experiences of living with the pain of endometriosis and to examine delay in diagnosis | 20 (20–47) | In-depth interviews | Content |
| Denny25 | To explore women's experiences of living with endometriosis | 30 (age not described) | Semi-structured interviews, diary-keeping | Thematic |
| Fauconnier et al.26 | To examine women's perceptions of symptoms of endometriosis and to compare them with those of physicians | 41 (21–45) | ‘In-depth’ interview (10 minutes) | Colaizzi's method (adaption) |
| Gilmour et al.27★ | To explore the impact of symptomatic endometriosis on women's social and working life | 18 (16–45) | Semi-structured interviews | Thematic |
| Huntington and Gilmour28★ | To explore women's perceptions of living with endometriosis | 18 (16–45) | Semi-structured interviews | Thematic |
| Jones et al.29 | To explore and describe the impact of endometriosis upon quality of life | 24 (21.5–44) | In-depth interviews | Grounded theory |
| Manderson et al.30○ | To describe the factors that lead women with endometriosis to initially seek medical advice | 40 (20–78) | In-depth interviews | Grounded theory |
| Markovic et al.31○ | To describe women's experiences of endometriosis | 30 (20–78) | In-depth interviews | Grounded theory |
| Seear32□ | To capture women with endometriosis’ reluctance to disclose menstrual irregularities | 20 (24–55) | Semi-structured interviews | Interactive |
| Seear33□ | To explore non-compliance with health care advice from the perspective of women with endometriosis | 20 (20–55) | Semi-structured interviews | Interactive |
| Seear34□ | To explore how women with endometriosis become experts in their own care | 20 (20–55) | Semi-structured interviews | Interactive |
| Whelan35 | To demonstrate why and how experience becomes crucial to endometriosis patient community members | 24 (age not described) | Focus group meetings, open-ended questionnaire conducted via email | Grounded theory |
●▪♦★□○Symbols indicate data generated by the same study.