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Impact of an SRH education programme on cystic fibrosis patients in Poland
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  1. Aleksandra Korzeniewska-Eksterowicz,, MD, PhD
  1. Paweł Majak, MD, PhD
  1. Tomasz Grzelewski, MD, PhD
  1. Włodzimierz Stelmach, MD, PhD
  1. Iwona Stelmach, MD, PhD
  1. Head of Pediatric Palliative Care Unit, Pediatric Palliative Care Unit, Department of Pediatrics, Oncology, Hematology and Diabetology, Medical University of Lodz and Department of Pediatrics and Allergy, Medical University of Lodz, Nicolaus Copernicus Hospital, Lodz, Poland; aleksandra.korzeniewska-eksterowicz@umed.lodz.pl
  2. Assistant, Department of Pediatrics and Allergy, Medical University of Lodz, Nicolaus Copernicus Hospital, Lodz, Poland; majakp@wp.pl
  3. Assistant, Department of Pediatrics and Allergy, Medical University of Lodz, Nicolaus Copernicus Hospital, Lodz, Poland; tomaszgrzelew@wp.pl
  4. Senior Lecturer, Head of Department of Social Medicine, Medical University of Lodz, Lodz, Poland; alergol@kopernik.lodz.pl
  5. Professor, Head of Department of Pediatrics and Allergy, Medical University of Lodz, Nicolaus Copernicus Hospital, Lodz, Poland; iwona.stelmach@kopernik.lodz.pl

https://doi.org/10.1136/jfprhc-2012-100432

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    Since patients with cystic fibrosis (CF) are living longer, it is important that sexual health is discussed in early adolescence. We have designed an education programme and evaluated its impact on the knowledge of sexual and reproductive health (SRH) issues in adolescents with CF and their parents. Prior to this programme most information was obtained from the internet, popular publications and other patients. Only 23% of adolescents discussed sexual health issues with their parents.

    Our programme was for 12 months and consisted of group meetings and individual sessions (16 meetings; 114.5 hours). Patients aged over 14 years and their parents were tested on their CF-related …

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