Table 2

Summary of reviewed papers

PaperAimParticipants (n) (age range in years)Data collectionAnalysis
Ballard et al.18To investigate the impact of delay in diagnosis of endometriosis on women28 (16–47)Semi-structured interviewsThematic
Cox et al.19To examine women's experiences of endometriosis and the lack of support for sufferers61 (20–64)Focus groupsThematic
Cox et al.20To report on women's experiences of endometriosis in relation to the use of complementary therapies61 (20–64)Focus groupsThematic
Denny and Mann21To determine the impact of endometriosis-associated dyspareunia on the lives and relationships of women30 (19–44)Semi-structured interviewsThematic
Denny and Mann22To explore women's experiences of the primary care setting30 (19–44)Semi-structured interviewsThematic
Denny23To explore women's experiences of living with endometriosis15 (20–47)Semi-structured interviewsThematic, content
Denny24To explore women's experiences of living with the pain of endometriosis and to examine delay in diagnosis20 (20–47)In-depth interviewsContent
Denny25To explore women's experiences of living with endometriosis30 (age not described)Semi-structured interviews, diary-keepingThematic
Fauconnier et al.26To examine women's perceptions of symptoms of endometriosis and to compare them with those of physicians41 (21–45)‘In-depth’ interview (10 minutes)Colaizzi's method (adaption)
Gilmour et al.27To explore the impact of symptomatic endometriosis on women's social and working life18 (16–45)Semi-structured interviewsThematic
Huntington and Gilmour28To explore women's perceptions of living with endometriosis18 (16–45)Semi-structured interviewsThematic
Jones et al.29To explore and describe the impact of endometriosis upon quality of life24 (21.5–44)In-depth interviewsGrounded theory
Manderson et al.30To describe the factors that lead women with endometriosis to initially seek medical advice40 (20–78)In-depth interviewsGrounded theory
Markovic et al.31To describe women's experiences of endometriosis30 (20–78)In-depth interviewsGrounded theory
Seear32To capture women with endometriosis’ reluctance to disclose menstrual irregularities20 (24–55)Semi-structured interviewsInteractive
Seear33To explore non-compliance with health care advice from the perspective of women with endometriosis20 (20–55)Semi-structured interviewsInteractive
Seear34To explore how women with endometriosis become experts in their own care20 (20–55)Semi-structured interviewsInteractive
Whelan35To demonstrate why and how experience becomes crucial to endometriosis patient community members24 (age not described)Focus group meetings, open-ended questionnaire conducted via emailGrounded theory
  • ●▪♦★□○Symbols indicate data generated by the same study.