Reference | Country | Years study conducted | Age (years) | Participants (n) | Study design | Study population | Disclosure outcomes reported |
Daley et al (2015)31 | USA | 2003–2005 | Men: 18–66 Women: 18–65 | 344 | Questionnaire completed following receipt of an HPV-positive result | Women (n=154) attending a student health service clinic and planned parenthood clinics for a gynaecological examination and Pap smear Men (n=190) participating in the HPV in men study (HIM)* | Anticipated psychological impact of disclosure |
Barnack-Tavlaris et al (2016)29 | USA | 2013 | Not specified | 127 blog posts | Content analysis of HPV blog posts | Individuals who posted a blog to the Experience Project website experience of “I have HPV” | Anticipated psychological impact of disclosure |
Bertram & Magnussen (2008)30 | USA | Not specified | 18–65 | 10 | Unstructured interviews | Women with a history of an abnormal Pap smear recruited at the time of their annual gynaecological examination from a women’s health clinic in Hawaii | Anticipated psychological impact of disclosure, when is disclosure necessary?, managing disclosure |
Kosenko et al (2012)32 | USA | Not specified | 19–56 | 25 | Semi-structured interviews | Women answering an advertisement posted online (on social media websites and online support groups) and in community centres, libraries, restaurants, coffee shops, supermarkets and buildings in college campuses in cities in the southeastern United States about the stress and coping of women with HPV | Anticipated psychological impact of disclosure, managing disclosure |
Kahn et al. (2005)33 | USA | 2002 | 14–21, mean: 17.2 | 100 | Individual interviews | Women attending an urban, hospital-based teen health centre who were tested for HPV | Anticipated psychological impact of disclosure |
Lin et al (2011)34 | Taiwan | 2008 | 27–56 | 20 | Semi-structured interviews | Women attending a gynaecological outpatient clinic of a university-based hospital in Taipei, Taiwan | When is disclosure necessary?, managing disclosure |
McCaffery & Irwig (2005)35 | Australia | 2002 | Range unknown, 53% were <35 years, 47% were >35 years | 19 | In-depth, unstructured interviews | Women attending family planning clinics, general practice and specialist gynaecologist practices in Sydney, Australia, and the surrounding area | Anticipated psychological impact of disclosure, When is disclosure necessary? |
McCaffery et al (2006)24 | UK | 2001–2003 | Age categories reported: 20–29, 30–39, 40–49, 50–64 | 74 | In-depth interviews | Women taking part in clinic clinical trials of HPV testing or attending colposcopy clinics where HPV testing is carried out | Anticipated psychological impact of disclosure, when is disclosure necessary?, managing disclosure |
McCurdy et al (2011)37 | USA | 2003–2004 | 18–47 (women that the article focuses on were aged between 21 and 45) | 42 (article focuses on 18 women who were aware of their HPV status) | In-depth interviews | Women attending three private primary care clinics who were found to have atypical squamous cells of undetermined significance (ASCUS) or a low-grade squamous intraepithelial lesion as well as a high-risk HPV type | Anticipated psychological impact of disclosure |
Newton & McCabe (2008)38 | Australia | Not specified | 19–59 | 60 (30 with genital herpes, 30 with HPV) | Semi-structured interviews | Men (n=30) and women (n=30) responding to an advertisement about the study posted on STI websites, support groups and online STI communities | Anticipated psychological impact of anticipated disclosure, when is disclosure necessary? |
Parente Sa Barreto et al (2016)39 | Brazil | 2012 | 20–42 | 14 | Semi-structured interviews | Women attending a Specialised Medical Carer Service unit (a public service supporting sexual and reproductive care). Women were excluded from the study if they were attending the unit for the first time | Anticipated psychological impact of disclosure, managing disclosure |
Perrin et al (2006)40 | USA | Not specified | 18–44 | 52 | In-depth, semi-structured interviews | Women diagnosed as having one or more types of HPV attending one of three clinical sites (two Planned Parenthood clinics or the Student Health Service clinic at the University of South Florida) for an annual gynaecological examination | Anticipated psychological impact of disclosure, managing disclosure |
Waller et al (2007)36 | UK | 2003 | 21–64 | 30 | In-depth, semi-structured interviews | Women taking part in the ARTISTIC trial of HPV testing (a randomised trial of HPV testing in primary cervical screening) | Anticipated psychological impact of disclosure |
*The focus of this review was women’s concerns about disclosing HPV and therefore the findings from men taking part in this study were not included in the review.
HPV, human papillomavirus; STI, sexually transmitted infection.